Taylor was diagnosed with a very rare auto-immune disease called
dermatomyositis on Dec. 13th, 2009; while there is not a cure,
remission is possible with early and aggressive treatment...
This is Taylor's Mission to Remission.


Monday, December 12, 2011

Second Anniversary Eve...

For whatever reason, I can’t figure out what I want to say about it & can’t put a finger on how to feel in this moment. It was two years ago tonight that Taylor was admitted to Children’s in Milwaukee… we were in the ER for hours - they knew they wanted to admit her… they had no idea what floor to put her on because they had no clue what she could possibly have.

What I didn’t realize was that my sister Amy was on her way as well and showed up minutes after Taylor was put in an ER room, just to be there so we didn’t have to face it alone – and stayed until Taylor was brought upstairs… and then was back the next morning with a monster sized mocha coffee and chocolate covered espresso beans :) just minutes after visiting hours began and was the voice telling me and Taylor it was all going to be ok when the team of Dr.’s came in to explain the new normal called Dermatomyositis (JDM)…

Tonight I am grateful for family and friends, I can’t explain what ‘just being there’ meant to us… I am insanely grateful for the Rheumatology Dept at Children’s hospital in Milwaukee… I can still picture all of your faces… you diagnosed an extremely rare disease in less than 24 hours that many parents are left agonizing over for 3-12 months +, nothing short of Angels watching over her that week… and most of all I am grateful and blessed to be called mom by this sweet little 7 year old!! I love you honey :)

That's it for now... I haven't talked much about the real happenings before and I've been shutting certain memories out all this time because they can be painful in about 500 different ways, but there was a mountain of good things intertwined in the events of the last two years... and it would be a shame if they were lost or discounted.

It's just crazy... I came across this quote in an email, I've heard it before, but this time it really hit me. And it is spoken by one of my all time favorites...

"The walls we build around us to keep out sadness also keep out the joy." --Jim Rohn

Huh, I was reflecting on this quote all week for an entirely different reason, but it was really meant for me too.

Happy Monday everyone!! It's going to be a great week!!

1 comment:

  1. Hi,

    I have a quick question about your blog, would you mind emailing me when you get a chance?

    Thanks,

    Cameron

    ReplyDelete